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Rank: Advanced Member  Groups: Registered
Joined: 1/3/2010 Posts: 44 Location: Horsham, West Sussex
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Hi Everyone
I think I mentioned on here before that my big toes are appearing to deviate from being relatively straight and have huge numb patches on them. At the same time, I seem to have a lump over the big joint below where the toe starts, on the top bit of where the ball of my foot is. I hope this makes sense! It's pea-sized (petit pois, not garden pea!) and I wouldn't say it hurts as such but if I press on it, it feels weird.
I'm due to see the consultant in May and obviously I'll ask him about it but (just because I'm curious), could this be a rheumatoid nodule?
Thanks Kathryn xx
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Rank: Advanced Member  Groups: Registered
Joined: 7/10/2010 Posts: 43 Location: Little Dewchurch, Hereford
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I had a garden pea sized lump in the equivalent place at the base of my right index finger & asked my physio about it (I haven't got any nodules elsewhere & am sero-negative) It was getting really sore when I used my hand a lot esp if I wrote or did anything that pressed on it - incl using a computer mouse She got me in to see the Consultant at my next review intead of the Rheumy nurse He said it was almost definitely a nodule, as the physio & I thought, but wouldn't inject it in case it was in the tendon & the tendon ruptured After that he switched me from Humira to Rituximab (in fact he offered me a choice between that & leflonomide)
The really good news is that shortly after my 1st course of rituximab my nodule shrank dramatically & hasn't really been much of a problem since I'm due to start my next course in 3 weeks, 6 months after the first, so will see what happens...
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Ones appeared on my foot as well. I think I may have another one but not quite sure if it is one or not. Nurse told me that MTX can cause them. I'm not too happy about it but I know there is nothing I can do about it. I'm just pleased it's my foot and not my hand at least your feet aren't on show.
Paula
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Rank: Advanced Member  Groups: Registered
Joined: 2/14/2011 Posts: 301 Location: South Hampshire
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I had quite a big nodule on my elbow, which was irritating rather than painful. Interestingly it got bigger when I was on Leflenomide, but since I have been on 15 mg of prednis - it has nearly disappeared! Anne
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 1,035 Location: in a house
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Well the only one i have seen was mine .It grew on a large bump on my finger which i was born with . Which meant i kept knocking it and it had a red crusty top on it as i knocked it 3/4 times a day . so it was removed on the 4 th march last year along with my 57 yr bumb on the finger . i now have a flat bumpless finger that looks like the rest with a tiny scar .And never banged it since . Told it could grow back ?But reliff its gone .It was also dx as all sorts of things like i had a peice of dirt traped or got something from the garden but onlyknew when an expert said it was an r.a nodule on top of the bump and needed removeing christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 96 Location: Buckinghamshire
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I have a few of these at the moment - some are marrowfat pea sized! They are all around my wrists so am getting them checked out at the hospital next week as I don't want them to restrict my movement. My rheumy usually injects them with steroids - it's quite sore as he rummages around with the needle 'trying to get underneath the tendon sheath'!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I went to see my consultant last Friday and I mentioned to him that nodules had started to appear on my foot (only the left one at the moment) and that the nurse had told me that it could be MTX causing it. He didn't confirm that it was MTX but did say that if I am genetically prone to them then I will get them now. Also said that people with Scandinavian desent were more prone to getting them. He did laugh when I pointed to my black hair and said I don't think I've got any links to Scandinavia. Also said that people from York and Scotland are more prone to them.
Paula
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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I went to see my consultant last Friday and I mentioned to him that nodules had started to appear on my foot (only the left one at the moment) and that the nurse had told me that it could be MTX causing it. He didn't confirm that it was MTX but did say that if I am genetically prone to them then I will get them now. Also said that people with Scandinavian desent were more prone to getting them. He did laugh when I pointed to my black hair and said I don't think I've got any links to Scandinavia. Also said that people from York and Scotland are more prone to them.
Paula
Edit.....forgot to say that he said the only way to get rid of them was to have them surgically removed
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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 WHAT!!!! I was born and brought up in York!I lived there till I was 25. Wonder why people from York are more prone to them? I have some on my fingers and on one foot. Doreen xx
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Rank: Newbie
Groups: Registered
Joined: 2/15/2011 Posts: 3
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Hello everyone
I had a very large nodule on my right elbow for years - not troublesome but unsightly. Then a few years ago it started to shrink! Now it has disappeared altogether. More recently (last year) I had two nodules removed from two fingers on my right hand. They were getting knocked frequently and sometimes bled badly. I was told they may return but for the moment all is well. I was interested that several members mentioned MTX as being a probable cause - I take 10mg weekly (no other drug), but no-one has suggested to me at the clinic that MTX could be the cause. As for my feet, my main problem is not nodules but "curly toes". Where these rub on shoes I get nasty sores which have to be dressed daily - a job my husband performs expertly. Apart from that problem my feet aren't too bad; but getting comfortable shoes is always difficult.
What I have noticed about the disease is that it often occurs all down one side of the body only. In my case it is the right side - shoulder, elbow, knee (where it all started) and right foot. Also my right hand is worse than the left. I do have some problem in other joints but it is more marked on the right side.
Funny old life, isn't it?
Marian
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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It's RA that causes the nodules, but apparently taking mtx makes us more prone to developing them.
Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Marian-T wrote: What I have noticed about the disease is that it often occurs all down one side of the body only. In my case it is the right side - shoulder, elbow, knee (where it all started) and right foot. Also my right hand is worse than the left. I do have some problem in other joints but it is more marked on the right side.
Well Marian you must be about as odd as me as I am regularly being told that RA is always symmetrical, and if it isn't it soon will be! Well mine isn't, never has been and at this stage looks very unlikely that it ever will be! Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Doreen You must of some Viking blood in you. Paula
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Rank: Advanced Member  Groups: Registered
Joined: 1/3/2010 Posts: 44 Location: Horsham, West Sussex
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Hello all
Sorry I haven't been back to reply. It must have seemed so rude! I've been having problems with my laptop.
Reading through all your responses, it seems I am not alone and it is interesting that MTX is blamed for contributing to the nodules (I'm on 25mg).
I am also of Scottish descent (well, half of me is, anyway) so maybe I can blame that too!
Kathryn xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Been looking and found these links http://arthritisinsight....rum_posts.asp?TID=27833 http://www.webmd.com/rhe...uide/rheumatoid-nodules (Scroll down the page for the bit 'What causes rheumatoid nodules) Paula x
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